Meet Kyle Smith

Kyle James Smith came into this world prematurely at 32 weeks weighing 4lb. 2oz on August 21, 2000.  Kyle spent the first five weeks of his life in the Neonatal Intensive care unit at Monmouth Medical Center in Long Branch, NJ. The Smith family spent countless hours by Kyle’s side while staying at the nearby Ronald McDonald house so they could be close to Kyle. 

Other than his low birth weight, Kyle appeared to be a happy and healthy baby like most others.  Although the first few months of Kyle’s life were relatively uneventful, at around 8 months old, Kyle’s dad became concerned when he wasn’t developing in the same manner that his older brother had.

Kyle James Smith - Cage Therapy - Lviv, Ukraine

His movement was stiff to non-existent, and his speech did not include any basic words such as "yes" , "mom" or “dad”.  After having a MRI performed, the Smiths learned the sad news that Kyle had Periventricular Leukomalacia (damaged white matter in the frontal portion of the brain) which led to his diagnosis of spastic dystonic quadriplegia, one the most serious forms of cerebral palsy.   It was at this point that the Smiths realized that Kyle’s  life, and their family’s, may be prove to be a difficult one.

Kyle’s years have consisted of endless trips to medical specialists and daily speech, physical and occupational therapies.  With each visit, the Smiths always held out hope that something could be done to help Kyle achieve some sort of “normalcy” in his life.  Suffice to say, more often than not the Smiths did not hear a positive assessment from the various medical professionals who evaluated Kyle.

Kyle’s journey of attempts to help find treatment for his condition has taken him to the Lviv, Ukraine for special therapies at the International Clinic of Rehabilitation and Budapest, Hungary for Conductive Education at the Peto Instiute.  Over the years Kyle has also participated in various treatments and therapies such as: Hyperbaric Oxygen Therapy (HBOT),  Botox and Alcohol Blocks, Cage/Suit Therapy, Hippo Therapy (Horseback Riding).  Although each stop did bring various levels of relief and improvement to his condition, his speech and movement remained severely limited.

Kyle James Smith - Hyperbaric Oxygen Therapy (HBOT), Parsippany, NJ

Today Kyle attends a school featuring a multi-disability program at Lakeview School in Edison, New Jersey, as well as daily therapy sessions at various locations.  Although his parents, relatives and friends have worked tirelessly to help make Kyle’s life as comfortable and enjoyable as possible, the sad fact remains that he remains in a power-based wheelchair with limited speech and body movement.  However, with each visit to a therapy session, and each week he attends his new school, Kyle does show signs of improvement in speech and movement.   And those closest to him know that Kyle has the determination to continue improving.   That much is evident with his ever-present smile, which always brings one to every person he is around!

Kyle James Smith - Absury Park Water Park